<!DOCTYPE html><html><head><title></title><style type="text/css">p.MsoNormal,p.MsoNoSpacing{margin:0}</style></head><body><p class="MsoNormal" style="text-align:justify;">Dear colleagues,<br></p><div><br></div><div>Accessibility, transparency, bias, and ethical risks for the sharing and reuse of human brain data are increasingly important considerations in neuroscience and artificial intelligence, including research that applies human brain data in modeling biological structures or building intelligent systems. <br></div><div><br></div><div>You are invited to attend an
upcoming <a href="https://event.roseliassociates.com/brain-newg-ws-july-2023/">Workshop
on Ethics of Sharing Individual Level Human Brain Data Collected in Biomedical
Research</a>. This workshop, hosted by the <a href="https://braininitiative.nih.gov/about/neuroethics-working-group">BRAIN
Neuroethics Working Group</a> (NEWG), is scheduled as a two-part hybrid event
virtually and in-person in Bethesda, Maryland on <b>Monday, July 17, 2023 and
Tuesday, July 18, 2023 from approximately 10:00 AM ET – 5:00 PM ET on both
days.</b><br></div><p class="MsoNormal" style="text-align:justify;"> <br></p><p class="MsoNormal align-left" style="text-align:left;">Data sharing accelerates
scientific progress and maximizes the societal value of research, providing an
ethical imperative to share data. However, sharing human research data
may involve potential risks to participants or communities. Some scholars have
argued the risks of data sharing may be different for brain data than other
types of biomedical data. The National Institutes of Health (NIH) in the US is committed to promoting responsible data
sharing (<a href="https://grants.nih.gov/grants/guide/notice-files/not-od-21-013.html">NOT-OD-21-013</a>).
In order to put appropriate safeguards in place to manage potential risks of
data sharing, a better understanding of what the risks are of sharing different
types of human brain data is critical.<br></p><p class="MsoNormal align-left" style="text-align:left;"> <br></p><p class="MsoNormal align-left" style="text-align:left;">The US <a href="https://braininitiative.nih.gov/">BRAIN Initiative</a> is at
the forefront of data sharing in neuroscience at the NIH (see <a href="https://grants.nih.gov/grants/guide/notice-files/NOT-MH-19-010.html">NOT-MH-19-010</a>) and it has an opportunity to carefully consider these ethical
challenges with the input of the <a href="https://braininitiative.nih.gov/about/neuroethics-working-group">BRAIN
Neuroethics Working Group</a> (NEWG). The workshop aims to explore
meaningful ways to categorize human brain data by potential risks of data
sharing. Additionally, resulting differences in how to treat the data will
be considered. More information, including the
workshop <a href="https://event.roseliassociates.com/brain-newg-ws-july-2023/agenda/">agenda</a> and <a href="https://event.roseliassociates.com/brain-newg-ws-july-2023/registration/">registration
details</a>, can be found on the <a href="https://event.roseliassociates.com/brain-newg-ws-july-2023/">workshop
website</a>. Workshop panels and speakers include:<br></p><div><br></div><div><b>Panel 1: The data that is
collected and stored by neurotechnologies and the inferences that can be made
from these data</b><br></div><ul style="margin-top:0in;" type="disc"><li class="MsoListParagraphCxSpFirst" style="margin-left:0in;text-align:justify;"><span style=""><a href="https://www.nmr.mgh.harvard.edu/user/7054">Susie
Huang, MD, PhD</a>, Associate Professor of Radiology, Harvard Medical
School</span><br></li><li class="MsoListParagraphCxSpMiddle" style="margin-left:0in;text-align:justify;"><span style=""><a href="https://vl2.gallaudet.edu/people/lorna-quandt">Lorna
Quandt, PhD</a>, Associate Professor of Educational Neuroscience,
Gallaudet University</span><br></li><li class="MsoListParagraphCxSpMiddle" style="margin-left:0in;text-align:justify;"><span style=""><a href="https://www.ucsfhealth.org/providers/dr-doris-wang">Doris
Wang, MD, PhD</a>, Assistant Professor of Neurosurgery, University of
California at San Francisco,</span><br></li><li class="MsoListParagraphCxSpLast" style="margin-left:0in;text-align:justify;"><span style=""><a href="https://www.rnel.pitt.edu/people/jennifer-l-collinger-phd">Jennifer
Collinger, PhD</a>, Associate Professor of Physical Medicine and
Rehabilitation, University of Pittsburgh</span><br></li></ul><p class="MsoNormal" style="text-align:justify;"><b>Panel 2: Inferences to be
drawn from data and their implications for data sharing</b><br></p><ul style="margin-top:0in;" type="disc"><li class="MsoListParagraphCxSpFirst" style="margin-left:0in;text-align:justify;"><span style=""><a href="https://conorrussomanno.com/">Conor
Russomano</a>, Founder and CEO, OpenBCI</span><br></li><li class="MsoListParagraphCxSpMiddle" style="margin-left:0in;text-align:justify;"><span style=""><a href="https://www.cs.utexas.edu/people/faculty-researchers/alexander-huth">Alexander
Huth, PhD</a>, Assistant Professor of Neuroscience, University of Texas at
Austin</span><br></li><li class="MsoListParagraphCxSpMiddle" style="margin-left:0in;text-align:justify;"><span style=""><a href="https://knight-hennessy.stanford.edu/people/jocelyn-ricard">Jocelyn
Ricard</a>, Graduate Student, Stanford University</span><br></li><li class="MsoListParagraphCxSpLast" style="margin-left:0in;text-align:justify;"><span style=""><a href="https://www.braingate.org/team/michael-young/">Michael
Young, MD</a>, Associate Director, NeuroRecovery Clinic, Massachusetts
General Hospital</span><br></li></ul><p class="MsoNormal" style="text-align:justify;"><b>Panel 3: The potential risks
of sharing different types of human brain data</b><br></p><ul style="margin-top:0in;" type="disc"><li class="MsoListParagraphCxSpFirst" style="margin-left:0in;text-align:justify;"><span style=""><a href="https://poldracklab.org/">Russell
Poldrack</a>, PhD, Professor of Psychology, Stanford University</span><br></li><li class="MsoListParagraphCxSpLast" style="margin-left:0in;text-align:justify;"><span style=""><a href="https://research.ibm.com/people/sara-berger">Sara
Berger, PhD</a>, Senior Research Scientist, IBM</span><br></li></ul><p class="MsoNormal" style="text-align:justify;"><b>Panel 4: Research
participants’ perspectives on sharing human brain data</b><br></p><ul style="margin-top:0in;" type="disc"><li class="MsoListParagraphCxSpFirst" style="margin-left:0in;text-align:justify;"><span style="">Nathan Copeland, Research participant</span><br></li><li class="MsoListParagraphCxSpMiddle" style="margin-left:0in;text-align:justify;"><span style=""><a href="https://www.peoplewithempathy.org/team#CVR">Christine
Von Raesfeld</a>, Founder and CEO of People with Empathy</span><br></li><li class="MsoListParagraphCxSpLast" style="margin-left:0in;text-align:justify;"><span style=""><a href="https://www.bcm.edu/people-search/amy-mcguire-26394">Amy
McGuire, JD, PhD</a>, Leon Jaworski Professor of Biomedical Ethics and Director,
Baylor College of Medicine</span><br></li></ul><p class="MsoNormal" style="text-align:justify;"><br></p><div><b>Workshop Details</b><br></div><div><br></div><div>More information, including the
workshop <a href="https://event.roseliassociates.com/brain-newg-ws-july-2023/agenda/">agenda</a>,
can be found on the <a href="https://event.roseliassociates.com/brain-newg-ws-july-2023/">workshop
website</a>. <b><a href="https://event.roseliassociates.com/brain-newg-ws-july-2023/registration/">Registering</a> for the event will enable you to attend the workshop and will ensure that you
can receive updates about the products emerging from the workshop.</b> Please
note that in-person workshop spots may be limited, so please register for
in-person attendance by <b>Friday, July 7, 2023</b>. If you prefer to attend
virtually, please register to attend to engage with workshop speakers. You can
also watch via NIH Videocast at the links below:<br></div><ul style="margin-top:0in;" type="disc"><li class="MsoListParagraphCxSpFirst" style="margin-left:0in;text-align:justify;"><span style=""><a href="https://videocast.nih.gov/watch=49901">July
17, 2023 (10:00 a.m. – 5:00 p.m. ET)</a></span><br></li><li class="MsoListParagraphCxSpLast" style="margin-left:0in;text-align:justify;"><span style=""><a href="https://videocast.nih.gov/watch=49903">July
18, 2023 (10:00 a.m. – 5:00 p.m. ET)</a></span><br></li></ul><div><br></div><div>For workshop content-related
questions, please contact Drs. Nina Hsu (<a href="mailto:nina.hsu@nih.gov">nina.hsu@nih.gov</a>)
and Saskia Hendriks (<a href="mailto:saskia.hendriks@nih.gov">saskia.hendriks@nih.gov</a>).
For technical assistance, please contact Ella Blue (<a href="mailto:ella.blue@roseliassociates.com">ella.blue@roseliassociates.com</a>).<br></div><p class="MsoNormal"><br></p><div><br></div><p class="MsoNormal">_______________________________________________<br></p><p class="MsoNormal"><b>Joseph D. Monaco, Ph.D.</b><br></p><p class="MsoNormal">Scientific Program Manager [C] (NINDS/OD)<br></p><p class="MsoNormal"><i>Office of the BRAIN Director</i><br></p><p class="MsoNormal"><a href="mailto:joseph.monaco@nih.gov">joseph.monaco@nih.gov</a><br></p><div id="sig126918248"><div class="signature"><br></div></div><div><br></div></body></html>